발달장애아를 둔 어머니의 삶 체험: Parse의 연구방법 적용

Abstract

Purpose: The aim of this study was to investigate the experiences of mothers raising a child with developmental disabilities. Methods: The participants of this study were 9 mothers who had children with developmental disorders. Parse’s research method was used to analyze the experiences of these mothers. Results: The analysis revealed the following structure of their lived experiences: denial of the developmental disability diagnosis and the resulting pain from feelings of frustration, confusion, and guilt; a sense of hopelessness for the future and the emotional scars left by negative judgment; the pursuit of a happy future for their children; and finding new meaning in their children’s diagnoses. Conclusion: Despite the persistent pain and guilt experienced by these mothers, they can view their lives in a positive light by exploring the significance of their own experiences. These findings suggest that these mothers should recognize themselves as recipients of social support services and seek professional